Struggles and Triumphs

A son was born. Freshly arriving in this new world of ours. Eyes bright and in wonder of everything he saw. His mother held him close to her chest, beaming with pride at the incredible miracle she held. Young parents, inexperienced in the ways of these kinds of miracles, were happily concerned with the welfare and safety of this frail little human.

A little more than a year later, a second child was born to this couple. Again, seem as a blessing and gift, but it was a challenge to keep up with these two small boys.  As both boys grew, it seemed that the second son was progressing more quickly than the first. This observation and later concern was borne to be true. The oldest son was diagnosed with a developmental delay, learning disability and a turned leg that mildly affected his walking. This was not good news. What did it all mean? How would they cope? What did it mean for their son? What would his future be like? And where would they turn for help.

The parents found help through a local organization called the Happiness House. The staff at the Happiness House assured the parents and helped them with the necessary paperwork to petition family court to provide the necessary services for their son.

Later their son was diagnosed with ADD, OCD and suffered tics under the tourette’s umbrella. Braces were fashioned for his leg to straighten out his walk. Again the questions peppered the minds of the parents. Physical and occupational therapists, speech pathologists and other professionals worked with their son.

When this young boy was old enough to enter the educational system, he received a new team of professionals. He had difficulty learning school basics. But with steadfast persistence by his team, patience by his parents and, at times begrudging cooperation by the young man, he did learn.

‘Leo the Late Bloomer’ by Robert Kraus was a favorite book used by his teachers. The book carried a powerful message of hope. This young man continued to struggle all through school. Eventually the most visible tics subsided. He had learned to read and write. He enjoyed video games, riding bikes and taking walks.

Unfortunately, before he graduated from high school, his mother decided that she needed a different life away from her family. This was an incredibly difficult adjustment for the boys and their father. But with patience and courage, they moved on.

His high school counselor helped his parents find continuing services after school. New York’s VESID (Vocational and Educational Services for Individuals with Disabilities) provided referrals to the ARC of Ontario County. Their services placed him in a work program where he earned some money, learned to socialize with co-workers, and helped to develop his self-esteem. He blossomed there.

Along with his experiences in working, he wished to extend his life adventure by learning how to drive. After several years with a learning permit, he finally received his license. He continues to explore his growing independence.

It had been incredible to watch this young man push against these difficulties. Even though these conditions still exist, he still pushes gently against them. I am very proud of him. I am not sure of all the potential within this young man. But I hope that he knows that I will be in his life as long as I can to witness his further victories. This young man is my son, Brandon.

Brandon, if you are reading this, do not be angry about the challenges you face. Be proud of yourself, like I am proud of you, for all that you have accomplished. You are an incredible young man.

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